Autismo em adultos

relatos de vida após um diagnóstico tardio

Autores

  • Carla Gruber Gikovate Pontifícia Universidade Católica do Rio de Janeiro
  • Terezinha Féres-Carneiro Pontifícia Universidade Católica do Rio de Janeiro

DOI:

https://doi.org/10.37067/rpfc.v14i1.1177

Palavras-chave:

Experiência de vida, Transtorno do Espectro do Autismo, Adulto, Experiência de Vida

Resumo

Anteriormente considerado um transtorno raro da infância, hoje o autismo é um diagnóstico frequente e com crescente demanda em todas as faixas etárias, incluindo pessoas que não receberam diagnóstico na infância, mas que percebem características desta condição. Este estudo, que faz parte de uma pesquisa mais ampla sobre a experiência de adultos brasileiros que receberam diagnóstico do transtorno do espectro autista (TEA) após 18 anos, tem como objetivo explorar os relatos de vida, presentes e passados, deste grupo de pessoas. Para tal, realizou-se uma pesquisa qualitativa na qual foram entrevistados 12 participantes e os dados coletados foram analisados a partir do método de análise de conteúdo, na sua vertente categorial. Das entrevistas emergiram várias categorias de análise. Considerando o objetivo deste trabalho, serão apresentadas e discutidas as seguintes categorias: dificuldade social como o ponto central; questões sensoriais; dificuldade de linguagem e ingenuidade; rigidez/comportamento repetitivos; e facilidades/vantagens que o autismo trouxe. Observou-se que a dificuldade social se manteve como algo central, mesmo em um grupo de adultos com quadros de autismo leve, assim como as queixas sensoriais, a dificuldade para o entendimento de linguagem figurada e a rigidez. O hiperfoco atencional é citado como algo positivo e que traz facilidade para o dia a dia. Concluiu-se que as características descritas acima se mostram muito presentes na vida deste grupo de autistas, com significativo prejuízo para o dia a dia.

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Biografia do Autor

Carla Gruber Gikovate, Pontifícia Universidade Católica do Rio de Janeiro

Médica Neurologista; Doutora em Psicologia Clínica; Especialista em educação especial inclusiva.
Professora Adjunta da Faculdade de Medicina de Petrópolis.

Terezinha Féres-Carneiro, Pontifícia Universidade Católica do Rio de Janeiro

Doutora em Psicologia Clínica. Professora Emérita do Departamento de Psicologia da PUC-Rio e Psicóloga Clínica.

Referências

Amato, C. A. H. (2022) Aspectos pragmáticos no TEA. In A. C. Tamanaha, C. C. Ribeiro, C. S. Azoni, J.O. Lira (Org.), Estudos de linguagem no transtorno do espectro do autismo. – São Paulo, SP: ABarros.

American Psychiatric Association (1994). Manual de Diagnóstico e Estatística de Distúrbios Mentais DSM-IV. São Paulo: Manole,

American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). American Psychiatric Association. Ausderau, K., Sideri

Anderson, C., & Butt, C. (2018). Young Adults on the Autism Spectrum: The Struggle for Appropriate Services. Journal of autism and developmental disorders, 48(11), 3912–3925. https://doi.org/10.1007/s10803-018-3673-z

Ashinoff, B.K., & Abu-Akel. (2021). A. Hyperfocus: the forgotten frontier of attention. Psychological Research 85, 1–19 https://doi.org/10.1007/s00426-019-01245-8

Attwood. T. & Gray, C. (1999), The Discovery of "Aspie" Criteria, The Morning News. Volume 11, Number 3.

Bardin, L. (2016). Análise de conteúdo. Lisboa: Edições 70.

Booth T, Murray AL, McKenzie K, Kuenssberg R, O’Donnell M, Burnett H. (2013). Brief report: an evaluation of the AQ-10 as a brief screening instrument for ASD in adults. J Autism Dev Disord; 43: 2997–3000.

Bottema-Beutel, K., Kapp, S. K., Lester, J. N., Sasson, N. J., & Hand, B. N. (2021). Avoiding Ableist Language: Suggestions for Autism Researchers. Autism in adulthood : challenges and management, 3(1), 18–29. https://doi.org/10.1089/aut.2020.0014

Buck, T. R., Viskochil, J., Farley, M., Coon, H., McMahon, W. M., Morgan, J., & Bilder, D. A. (2014). Psychiatric comorbidity and medication use in adults with autism spectrum disorder. Journal of autism and developmental disorders, 44(12), 3063–3071. https://doi.org/10.1007/s10803-014-2170-2

Chou, W. J., Wang, P. W., Hsiao, R. C., Hu, H. F., & Yen, C. F. (2020). Role of School Bullying Involvement in Depression, Anxiety, Suicidality, and Low Self-Esteem Among Adolescents With High-Functioning Autism Spectrum Disorder. Frontiers in psychiatry, 11, 9. https://doi.org/10.3389/fpsyt.2020.00009

Crane, L., Adams, F., Harper, G., Welch, J., & Pellicano, E. (2019). 'Something needs to change': Mental health experiences of young autistic adults in England. Autism : the international journal of research and practice, 23(2), 477–493. https://doi.org/10.1177/1362361318757048

Crane, L., Goddard, L., & Pring, L. (2009). Sensory processing in adults with autism spectrum disorders. Autism, 13(3), 215-228. https://doi.org/10.1177/1362361309103794

Csikszentmihalyi, M. (1975). Beyond Boredom and Anxiety. Washington: Jossey-Bass Publishers

Damasio, A. & Maurer, R. (1978), A neurological model for childhood autism. Arch. Neurol., 35:777-786.

DePape, A.-M., & Lindsay, S. (2016). Lived Experiences From the Perspective of Individuals With Autism Spectrum Disorder: A Qualitative Meta-Synthesis. Focus on Autism and Other Developmental Disabilities, 31(1), 60-71. https://doi.org/10.1177/1088357615587504

Dietz P. M., Rose, C. E., McArthur, D., & Maenner, M. (2020). National and State Estimates of Adults with Autism Spectrum Disorder. Journal of autism and developmental disorders, 50(12), 4258–4266. https://doi.org/10.1007/s10803-020-04494-4

Fein, D., Pennington, B., Markowitz, P., Braverman, M., & Waterhouse, L. (1986). Toward a neuropsychological model of infantile autism: Are the social deficits primary? Journal of the American Academy of Child and Adolescent Psychiatry, 25 198–212.

Grandin, T (2010, February) The world needs all kinds of minds [Video]. TED Conferences https://www.ted.com/talks/temple_grandin_the_world_needs_all_kinds_of_minds?utm_campaign=tedspread&utm_medium=referral&utm_source=tedcomshare

Grandin, T. (2020). Different-- not less: inspiring stories of achievement and successful employment from adults with autism, Asperger's, and ADHD. Arlington, TX, Future Horizons Inc.

Handen, B. L., Mazefsky, C. A., Gabriels, R. L., Pedersen, K. A., Wallace, M., Siegel, M., & Autism and Developmental Disorders Inpatient Research Collaborative (ADDIRC) (2018). Risk Factors for Self-injurious Behavior in an Inpatient Psychiatric Sample of Children with Autism Spectrum Disorder: A Naturalistic Observation Study. Journal of autism and developmental disorders, 48(11), 3678–3688. https://doi.org/10.1007/s10803-017-3460-2

Happé, F. (2015). Autism as a neurodevelopmental disorder of mind-reading. Journal of the British Academy, 3, 197–209. DOI 10.5871/jba/003.197

Hollocks, M. J., Lerh, J. W., Magiati, I., Meiser-Stedman, R., & Brugha, T. S. (2019). Anxiety and depression in adults with autism spectrum disorder: A systematic review and meta-analysis. Psychological medicine, 49(4), 559-572.

Howlin, P., & Moss, P. (2012). Adults with autism spectrum disorders. Canadian journal of psychiatry. Revue canadienne de psychiatrie, 57(5), 275–283. https://doi.org/10.1177/070674371205700502

Kanner, L. (1943). Autistic disturbances of affective contact. Nervous Child, 2, 217–250

Kirby, A. V., Bilder, D. A., Wiggins, L. D., Hughes, M. M., Davis, J., Hall-Lande, J. A., Lee, L.-C., McMahon, W. M., & Bakian, A. V. (2022). Sensory features in autism: Findings from a large population-based surveillance system. Autism Research, 15(4), 751–760. https://doi.org/10.1002/aur.2670

Lai, M.-C., & Baron-Cohen, S. (2015). Identifying the lost generation of adults with autism spectrum conditions. The Lancet. Psychiatry, 2(11), 1013–1027. https://doi.org/10.1016/S2215-0366(15)00277-1

Lai, M. C., Kassee, C., Besney, R., Bonato, S., Hull, L., Mandy, W., Szatmari, P., & Ameis, S. H. (2019). Prevalence of co-occurring mental health diagnoses in the autism population: a systematic review and meta-analysis. The lancet. Psychiatry, 6(10), 819–829. https://doi.org/10.1016/S2215-0366(19)30289-5

Leedham, A., Thompson, A. R., Smith, R., & Freeth, M. (2020). ‘I was exhausted trying to figure it out’: The experiences of females receiving an autism diagnosis in middle to late adulthood. Autism, 24(1), 135-146. https://doi.org/10.1177/1362361319853442

Lord, C., Risi, S., Lambrecht, L., Cook, E. H., Jr, Leventhal, B. L., DiLavore, P. C., Pickles, A., & Rutter, M. (2000). The autism diagnostic observation schedule-generic: a standard measure of social and communication deficits associated with the spectrum of autism. Journal of autism and developmental disorders, 30(3), 205–223.

Lovaas, O. I., Schreibman, L., Koegel, R., & Rehm, R. (1971). Selective responding by autistic children to multiple sensory input. Journal of Abnormal Psychology, 77(3), 211–222. https://doi.org/10.1037/h0031015

Mandell, D. S., Novak, M. M., & Zubritsky, C. D. (2005). Factors associated with age of diagnosis among children with autism spectrum disorders. Pediatrics, 116(6), 1480–1486. https://doi.org/10.1542/peds.2005-0185

Martínez-González, A. E., Cervin, M., & Piqueras, J. A. (2022). Relationships Between Emotion Regulation, Social Communication and Repetitive Behaviors in Autism Spectrum Disorder. Journal of autism and developmental disorders, 52(10), 4519–4527. https://doi.org/10.1007/s10803-021-05340-x

McDonnell, Andy & Milton, Damian (2014) Going with the flow: reconsidering ‘repetitive behaviour’ through the concept of ‘flow states’. In: Jones, Glenys and Hurley, Elizabeth, eds. Good Autism Practice: autism, happiness and wellbeing. BILD, Birmingham, UK, pp. 38-47. ISBN 978-1-905218-35-6.

Mousinho, R., Schmid, E., Mesquita, F. & Pereira, J.(2021). Estratégias lingüísticas para crianças e adolescentes TEA no ensino fundamental e médio. In M. Soares & R. Mousinho. Tenho um aluno autista: e agora?, 133 – 151, Artesã. National Institute for Health and Clinical Excellence (2012). Autism: recognition, referral, diagnosis and management of adults on the autism spectrum, Vol 142. London: National Institute for Health and Clinical Excellence.

O'Neill, M., & Jones, R. S. (1997). Sensory-perceptual abnormalities in autism: a case for more research?. Journal of autism and developmental disorders, 27(3), 283–293. https://doi.org/10.1023/a:1025850431170

Park, I., Gong, J., Lyons, G.L., Hirota, T., Takahashi, M., Kim, B., Lee, S.Y., Kim, Y.S., Lee, J., & Leventhal, B.L. (2020). Prevalence of and Factors Associated with School Bullying in Students with Autism Spectrum Disorder: A Cross-Cultural Meta-Analysis. Yonsei Medical Journal, 61, 909 - 922.

Rapaport, H., Clapham, H., Adams,J., Lawson, W., Porayska-Pomsta, K., and Pellicano,E. (2023).“In a State of Flow”: A Qualitative Examination of Autistic Adults' Phenomenological Experiences of Task Immersion. Autism in Adulthood - Online ahead of print December 20, 2023 http://doi.org/10.1089/aut.2023.0032

Robertson, C. E., & Baron-Cohen, S. (2017). Sensory perception in autism. Nature reviews. Neuroscience, 18(11), 671–684. https://doi.org/10.1038/nrn.2017.112

Russell, A. J., Mataix-Cols, D., Anson, M., & Murphy, D. G. (2005). Obsessions and compulsions in Asperger syndrome and high-functioning autism. The British journal of psychiatry : the journal of mental science, 186, 525–528. https://doi.org/10.1192/bjp.186.6.525

Russell, G., Kapp, S. K., Elliott, D., Elphick, C., Gwernan-Jones, R., & Owens, C. (2019). Mapping the Autistic Advantage from the Accounts of Adults Diagnosed with Autism: A Qualitative Study. Autism in adulthood : challenges and management, 1(2), 124–133. https://doi10.1089/aut.2018.0035

Rutter, M. (I983). Cognitive deficits in the pathogenesis of autism. J. Child Psychol. Psvchiat., 24:513-531.

Sacks, O. (1995). Um Antropólogo em Marte: Sete histórias paradoxais, 297-331, São Paulo: Companhia das letras, 1995.

Sinclair J. (2013) Why I Dislike ‘‘Person First’’ Language. Autonomy, The Critical Journal of Interdisciplinary Autism Studies , 1(2).

Tavassoli, T., Miller, L. J., Schoen, S. A., Nielsen, D. M., & Baron-Cohen, S. (2014). Sensory over-responsivity in adults with autism spectrum conditions. Autism : the international journal of research and practice, 18(4), 428–432. https://doi.org/10.1177/1362361313477246

Trundle, G., Jones, K. A., Ropar, D., & Egan, V. (2023). Prevalence of Victimisation in Autistic Individuals: A Systematic Review and Meta-Analysis. Trauma, Violence, & Abuse, 24(4), 2282-2296. https://doi.org/10.1177/15248380221093689

Vogindroukas, I., Stankova, M., Chelas, E. N., & Proedrou, A. (2022). Language and Speech Characteristics in Autism. Neuropsychiatric disease and treatment, 18, 2367–2377. https://doi.org/10.2147/NDT.S331987

World Health Organization (1993). The ICD-10 classification of mental and behavioural disorders.

World Health Organization (2021). International statistical classification of diseases and related health problems (11th ed.). https://icd.who.int/

Yeung M. K. (2022). A systematic review and meta-analysis of facial emotion recognition in autism spectrum disorder: The specificity of deficits and the role of task characteristics. Neuroscience and biobehavioral reviews, 133, 104518. https://doi.org/10.1016/j.neubiorev.2021.104518

Zhang, Y., Roy, D. S., & Feng, G. (2022). Finding pleasure in repetitive behaviors. Neuron, 110(20), 3225–3227. https://doi.org/10.1016/j.neuron.2022.09.022

Zhou, M. S., Nasir, M., Farhat, L. C., Kook, M., Artukoglu, B. B., & Bloch, M. H. (2021). Meta-analysis: Pharmacologic Treatment of Restricted and Repetitive Behaviors in Autism Spectrum Disorders. Journal of the American Academy of Child and Adolescent Psychiatry, 60(1), 35–45. https://doi.org/10.1016/j.jaac.2020.03.007

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2025-07-19

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